Parenting Across the Autism Spectrum: Unexpected Lessons We Have Learned

Front Cover
Jessica Kingsley Publishers, Apr 27, 2006 - Social Science - 220 pages

Maureen F. Morrell and Ann Palmer are raising two very different children: Justin, a whirlwind of activity and mood swings, who is supervised in a residential farm community, and Eric, quiet and passive, who lives independently at college. The authors give an account of the striking similarities as well as the stark differences in their experiences of parenting children at opposite extremes of the autism spectrum.

The two mothers speak openly about their children's diagnosis and early childhood through to adolescence, young adulthood and the day they leave home. They give a moving account of the challenges they faced and the surprising consolations they found along their sons' very different paths in life. Through their friendship and two decades of shared experiences of parenting an ASD child, each has gained a clear understanding of her own strengths and limitations, as well as those of her child.

Parenting Across the Autism Spectrum offers a personal perspective and practical guidance for parents at the start of their journey with autism, especially those whose children are newly diagnosed. It also provides useful insights for professionals working with individuals across the autism spectrum and their families. The book was elected the 2007 Autism Society of America's Outstanding Literary Work of the Year.

From inside the book

Contents

Acknowledgements
9
Introduction
11
Anns Story
15
Maureens Story
23
The Siblings
33
Marriage and Extended Family
55
5 Advocating for Our Children
71
6 Taking Care of Ourselves
113
8 Dealing with the Public
153
9 Accepting Our Children and Ourselves
173
Anns Story
189
Maureens Story
195
Appendix A Student Information Sheet
209
Appendix B Books that Made a Difference
211
References
219
Copyright

7 Finding Our Way
133

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Popular passages

Page 28 - You gain strength, courage and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, "I lived through this horror. I can take the next thing that comes along." . . . You must do the thing you think you cannot do.
Page 113 - The problem is not merely one of Woman and Career, Woman and the Home, Woman and Independence. It is more basically : how to remain whole in the midst of the distractions of life; how to remain balanced, no matter what centrifugal forces tend to pull one off center...
Page 89 - Negotiation is a basic means of getting what you want from others. It is back-and-forth communication designed to reach an agreement when you and the other side have some interests that are shared and others that are opposed.
Page 13 - This may be the quintessential area that highlights the proposition of this chapter that "the more things change, the more they stay the same.
Page 213 - The Curious Incident of the Dog in the Nighttime by Mark Haddon (2003) Doubleday Random House This is a novel narrated by a 1 5-year-old teenager with HFA.
Page 17 - Division TEACCH: Treatment and Education of Autistic and related Communication handicapped Children, www.teacch.com Volkmar F, Cook EH Jr, Pomeroy J, et al.
Page 100 - I felt as if the weight of the world had been lifted off my shoulders.
Page 214 - Getting to Yes: Negotiating Agreement Without Giving In, by Roger Fisher and William Ury (Penguin Books).
Page 94 - When you find yourself facing a difficult negotiation, you need to step back, collect your wits, and see the situation objectively. Imagine you are negotiating on a stage and then imagine yourself climbing onto a balcony looking over the stage. The "balcony" is a metaphor for a mental attitude of detachment.
Page 219 - Centers for Disease Control and Prevention National Center on Birth Defects and Developmental Disabilities has a Web site on their Early Hearing Detection and Intervention Program (www.cdc.gov/ncbdddd/ehdi).

About the author (2006)

Maureen F. Morrell is married with three sons; Justin, the oldest at 28, has autism and lives and works in a residential farm community. Maureen has a background in nursing and public health, and has been active in advocacy for individuals with ASD and their families for over 20 years. She has served two terms on the Board of Directors of the Autism Society of North Carolina (ASNC) and in 1998 received ASNC's Parent of the Year Award. Ann Palmer is married with three children, one of whom, Eric, was diagnosed with autism when he was two years old. He is now 24. She has 13 years' experience working with families of individuals with autism at Division TEACCH (Treatment and Education of Autistic and related Communication handicapped Children). Ann coordinated a volunteer parent mentor program that provided support to over 800 families in North Carolina. In her current role as Director of Chapter Relations for the Autism Society of NC, she coordinates over 40 parent support groups throughout the state. She is also the author of Realizing the College Dream with Autism or Asperger Syndrome, published by Jessica Kingsley Publishers.

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